Recently I noticed that things were getting a bit blurry, so I went to the Shiley Eye\u00a0Institute at UC San Diego\u00a0to have it checked out. Guess what? \u00a0Dr. William Freeman, director of the Jacobs Retina Center, said I have macular degeneration! He was helpful in explaining what it is and the treatment for it trying to be reassuring but it didn\u2019t sound good. I have the dry kind in my left eye and the wet kind in my right.
\nI am 90 years old and often wondered which of my organs would fail first. In my age group\u00a0whatever doesn\u2019t dry out, leaks.\u00a0Little did I know that my first failed organ would be leaking blood vessels in my eye! “Intra-retinal fluid hemorrhaging in my retina.”\u00a0
\nWhen things like this happen to me, I become interested in observing myself to study my reactions to the news, assuming that I am not the only one to react this way and hoping\u00a0that it might be helpful to others. The stages of reactions I went through upon receiving this upsetting diagnosis:
\nStage 1\u2014Shock
\nSomehow this does not fit the image I have of myself as invulnerable. It\u2019s hard to believe that what I have seen happen to others is\u00a0now\u00a0happening to me. There is an element of fright; I am scared of the unknown.
\nStage 2\u2014In a funk!\u00a0
\nFeeling sorry for myself. On my way home I bumped into a couple of friends; I was very teary-eyed as I told them my bad news.
\nStage 3\u2014Catastrophising Worst-case scenario\u2014I\u2019m going to lose my sight; I will go blind. There\u2019s a white cane in my future. I am a writer, a researcher; I read a lot. This is the end of my productive life!\u00a0
\nStage 4\u2014Research
\nChecking out WebMD and Mayo Clinic online, talking to friends who have it, gathering information. Looking into available resources such as equipment that magnifies print, books on tape, speech recognition software on computers (none of which I will need in the foreseeable future).
\nThe incredible luck is that I live next to some of the top eye-care facilities\u00a0in the world, the Shiley Eye Institute, the Joan and Irwin Jacobs Retina Center, and the Hamilton Glaucoma Center, so I could not be in better hands. The scientist who discovered the substance that causes the leaky blood vessels is Napoleon Ferrara, MD, who also invented the most commonly used class of drugs to treat it (anti-VEGF agents). He is appointed to the UC San Diego Departments of Ophthalmology and Pathology, the Moore\u2019s Cancer Center, and the Shiley Eye Institute. As a result, I feel reassured that I will be able to keep writing for another few years (I\u2019m betting on making it to 100).
\nWhile waiting to be tested on the latest equipment\u00a0at Shiley,\u00a0I saw Eric Cabezas, who was part of a research team at the\u00a0Hamilton\u00a0Glaucoma Center\u00a0when I worked as a tester for their new machines for about 10 years. He told\u00a0me that 20 years ago macular degeneration was a sentence for eventual blindness; now there is treatment to prevent further deterioration. He cautioned me that for some people there is no best-case scenario. What helps in these circumstances is support. What is most useful is being part of a group of people with similar diagnoses where coping strategies can be shared.
\nStage 5\u2014Treatment
\nMy treatment consists of specially formulated vitamins for the dry kind of macular degeneration in my left eye and a monthly injection in my right eye, which will slow progression of the disease there. The idea of an injection in my eye made me anxious; there was no need to be.\u00a0Shiley retina specialist,\u00a0Eric Nudleman,\u00a0MD, Ph.D.,\u00a0began by numbing my eye. When I asked him when he was going to proceed with the injection, he replied he was already done.\u00a0I was surprised as I felt no pain.\u00a0
\nStage 6\u2014Best-case scenario: This isn\u2019t so bad. My father used to say:\u00a0“If this is the worst that will happen to me, I\u2018m signing the contract.”\u00a0I am writing this with my eyes still dilated, but I couldn\u2019t wait to tell my readers what is\u00a0happening to me as a possible roadmap for others. Yes, we can all go from\u00a0funk\u00a0through\u00a0let\u2019s explore all options\u00a0to\u00a0celebrate what still works\u00a0(my head, more or less), and re-invent ourselves with new disabilities, new coping mechanisms, and maybe the opportunity for new adventures. I\u2019m game! Natasha Josefowitz is the author of more than 20 books. She currently resides at White Sands Retirement Community in La Jolla.<\/p>","protected":false},"excerpt":{"rendered":"
Recently I noticed that things were getting a bit blurry, so I went to the Shiley Eye\u00a0Institute at UC San Diego\u00a0to have it checked out. Guess what? \u00a0Dr. William Freeman, director of the Jacobs Retina Center, said I have macular degeneration! He was helpful in explaining what it is and the treatment for it trying […]<\/p>","protected":false},"author":726,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_seopress_robots_primary_cat":"11560","_seopress_titles_title":"Receiving an upsetting diagnosis, and the six sequential reactions that follow","_seopress_titles_desc":"","_seopress_robots_index":"","jnews-multi-image_gallery":[],"jnews_single_post":[],"jnews_primary_category":[],"jnews_social_meta":[],"jnews_override_counter":[],"footnotes":""},"categories":[11549,11560,11593],"tags":[],"class_list":["post-299442","post","type-post","status-publish","format-standard","hentry","category-arts-entertainment","category-la-jolla-village-news","category-no-images"],"_links":{"self":[{"href":"https:\/\/test.sdnews.com\/es\/wp-json\/wp\/v2\/posts\/299442","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/test.sdnews.com\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/test.sdnews.com\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/test.sdnews.com\/es\/wp-json\/wp\/v2\/users\/726"}],"replies":[{"embeddable":true,"href":"https:\/\/test.sdnews.com\/es\/wp-json\/wp\/v2\/comments?post=299442"}],"version-history":[{"count":0,"href":"https:\/\/test.sdnews.com\/es\/wp-json\/wp\/v2\/posts\/299442\/revisions"}],"wp:attachment":[{"href":"https:\/\/test.sdnews.com\/es\/wp-json\/wp\/v2\/media?parent=299442"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/test.sdnews.com\/es\/wp-json\/wp\/v2\/categories?post=299442"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/test.sdnews.com\/es\/wp-json\/wp\/v2\/tags?post=299442"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}